Tuberous Sclerosis Organizations

• TSC Alliance (USA)
• Tuberous Sclerosis Complex International (TSCi)
• United Kingdom Tuberous Sclerosis Society

BRAIN & EPILEPSY ORGANIZATIONS 

Canadian Epilepsy Alliance: www.epilepsymatters.com

International Bureau for Epilepsy: www.ibe-epilepsy.org

Epilepsy Foundation: www.epilepsyfoundation.org

BC Epilepsy Society: www.bcepilepsy.com

Montreal Neurological Institute and Hospital: www.mni.mcgill.ca

Childrens Neurology: www.childneurologysociety.org

Epilepsy Canada: www.epilepsy.ca

Epilepsy Ontario: www.epilepsyontario.org

DEVELOPMENT ORGANIZATIONS & CENTRES 

National Institute for Learning Disabilities of Canada: www.nildcanada.org

Canadian Association for Community Living: www.cacl.ca

Alberta Association for Community Living: www.aacl.org

Community Living British Columbia: www.communitylivingbc.ca

Community Living Ontario: www.communitylivingontario.ca

Saskatchewan Association for Community Living: www.sacl.org

HEALTH ORGANIZATIONS 

Canadian Organization for Rare Disorders: www.raredisorders.ca

National Organization of Rare Disorders: www.rarediseases.org

Kidney Foundation of Canada: www.kidney.ca

Heart and Stroke Foundation of Canada: www.heartandstroke.com

Autism Canada Foundation: http://www.autismcanada.org/

Canadian Institute of Health Research: www.cihr-irsc.gc.ca

National Institute Health: www.cc.nih.gov

Health Canada: www.hc-sc.gc.ca

The Epilepsy Research Program of the Ontario Brain Institute: www.eplink.ca

Genetics

Athena Diagnostics: www.athenadiagnostics.com

Genes and Disease: www.ncbi.nlm.nih.gov/disease/TSC.html

 

Other Helpful Links

Family & Community Resource Centre (resources on a variety of child health topics or chronic illnesses): Health-information – library

Music Therapy:  www.musictherapy.ca

Yoga 4 Kids: www.yoga4kids.org

Atkins Diet: www.atkins.com

VNS Therapy: www.vnstherapy.com

National Sleep Foundation:  www.sleepfoundation.org

Medic Alert: www.medicalert.ca

Autism Treatments: www.autism.ca

Canadian Institute of Health research: www.cihr-irsc.gc.ca

Canadian Mental Health Association: www.ontario.cmha.ca

Public Health Agency of Canada: www.phac-aspc.gc.ca

Children and Adults with ADD: http://www.chadd.org/

Transitioning to STEM Toolkit for Students and Adults With ADHD or Learning Disabilities:

https://techbootcamps.utexas.edu/blog/stem-toolkit-for-adhd/

Mental Help: www.mentalhelp.net

Seizure Tracker: www.seizuretracker.com

Make-A-Wish: www.makeawish.ca