For more information please visit the links below. Press Conference Video: youtu.be/Lta3kLNOesw?a Global and Mail article: http://www.theglobeandmail.com/life/health-and-fitness/health/group-releases-strategy-to-help-canadians-with-rare-diseases-get-care/article24586987/ Help support this endeavor and sign the petition: http://ow.ly/NosTk
National Post, Rare Disease Supplement. March 28, 2015 View…
Tuberous Sclerosis Canada Sclérose Tubéreuse elected the Board of Directors and Executive committee at the Annual General Meeting on March 10, 2015. Election results are as follows: 4-year term Cathy Evanochko, Co-Chair Melissa Cote 2-year term Karen Shulist, Co-Chair Ray Marco, Secretary Jennifer Flinn, Director We would like to thank Patricia Nolan for her years of dedication as a director with TSCST, we wish her nothing but the best moving forward.
Dr. Anil Kapoor, Director of the Hamilton/Niagara TSC Program and Professor of Surgery (Urology) at McMaster University is hosting a TSC Patient meeting. All families and caregivers are encouraged to attend. You will have the opportunity to hear Dr. Kapoor speak on TSC related issues and to meet and network with others. Date/Time: TBD. Meeting to be rescheduled Location: Juravinski Cancer Centre Lecture Theatre, 4th Floor Juravinski Cancer Centre at Hamilton Health Sciences building, 699 Concession Street Hamilton, Ontario
TSC is associated with a wide range of cognitive, behavioral and psychiatric manifestations which can be quite concerning to individuals and their families. TAND (TSC Associated Neuropsychiatric Disorders) is a new terminology to describe these manifestations. An introduction to TSC associated neuropsychiatric disorders (TAND) and the TAND checklist are now available online! Access and download the document here: TAND checklist
The month of May is Tuberous Sclerosis Complex (TSC) awareness month in Canada, and May 15th is TSC Global Awareness Day. During this time, the goal is to increase public awareness about this genetic disorder that causes tumours. Please help to raise awareness alongside us.
E-Mail: TSCanadaST@gmail.com | Tuberous Sclerosis Canada, PO Box 35057 Essa Road RO, Barrie, ON L4N 5Z2
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