A major pharmaceutical manufacturer has commissioned market research to understand the unique experiences of TSC patients and their caregivers. Your participation in this project will help to expand on new treatments, as well as enhance awareness and improve education about TSC. Please click here for additional information.
In celebration of TSC Global Awareness day, Tuberous Sclerosis Canada Sclérose Tubéreuse (TS Canada ST) and the Tuberous Sclerosis Alliance (TS Alliance) are proud to announce they have joined in a partnership that will enhance community support, clinical care and research efforts in North America. For complete details see our official joint statement. JOINT STATEMENT TS Canada and TS Alliance
September 17th, 2016 * Vancouver, BC. TS Canada ST in partnership with the TSC Clinic at BC Children’s Hospital is pleased to announce the 2016 family education conference for those with Tuberous Sclerosis Complex (TSC), their families and their caregivers. This one –day conference will feature leading researchers and clinicians specializing in TSC (both local and from abroad) with topics relating to the latest research, diagnosis and treatment of TSC in both pediatrics and adults. This conference will help you CONNECT with others, CONQUER the many challenges of TSC and CELEBRATE the hope of new treatments. Plan now to join…
TS Canada ST is pleased to announce that we are holding a “WILD FOR A CURE” zoo walk fundraiser and family event in Calgary. Where: Calgary Zoo When: May 15, 2015 @ 9:30am Details: 1km or 5km Run/Walk. Following the run/walk, participants will enjoy a BBQ lunch at the Zoo and time to explore the Zoo for the remainder of the afternoon. Register now for this event! Go to www.runningroom.com to register See attached poster for more information. Calgary zoo walk poster
**REGISTRATION IS NOW CLOSED** TS Canada ST is pleased to announce that we are holding a “WILD FOR A CURE” zoo walk fundraiser and family event! Where: Toronto Zoo When: May 15, 2016 @ 9:45am (walk starts at 10:00am) Details: Following the walk, participants will enjoy a BBQ lunch at the Zoo Pavilion with up-close encounters, a scavenger hunt and time to explore the Zoo for the remainder of the afternoon. Please email tsczoowalk@gmail.com to register. TSC Zoo Walk Poster
The Hospital for Sick Children (SickKids) is delighted to announce the opening of the Comprehensive Tuberous Sclerosis Complex (TSC) Clinic this month. Please see the attached announcement for details regarding the clinic and referral process. Sick Kids TSC Clinic announcement
***SOLD OUT*** Join us Saturday April 9th for a Toronto Blue Jays game. All ticket proceeds will benefit TS Canada ST. Tickets are $50.00 and there are limited tickets available. Please email info@maximumrecruitment.ca to get your ticket today! See the poster for more info: Toronto Blue Jays Day to benefit TS Canada ST
TS Canada ST Co-chair Cathy Evanochko is quoted in this article on the challenges of diagnosing a rare disorder: http://healthydebate.ca/2015/11/topic/rare-diseases-undiagnosed-national-strategy
Tuberous Sclerosis Complex Autism Center of Excellence Network (TACERN) are currently seeking infants in Canada to participate in the study, “Early Biomarkers of Autism in Infants with Tuberous Sclerosis Complex (TSC)” Visit the NINDS Clinical Trials study page or the Tuberous Sclerosis Complex Autism Center of Excellence Network (TACERN) webpage for more information.
If you were not able to attend the New Therapies, New Hope Patient and Caregiver meeting in Toronto November 8th, 2015, you can still get information on what was presented. Go to http://tscanada.ca/conference-videos-and-slideshows/ and view the slideshows from some of the presenters.
E-Mail: TSCanadaST@gmail.com | Tuberous Sclerosis Canada, PO Box 35057 Essa Road RO, Barrie, ON L4N 5Z2
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