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Rare Disease Day
February 28, 2017 is Rare Disease Day! Everyone has a role to play in furthering rare disease research. Go to rarediseaseday.org to find out more.
February 28, 2017 is Rare Disease Day! Everyone has a role to play in furthering rare disease research. Go to rarediseaseday.org to find out more.
Because infantile spasms can be mistaken for other conditions or appear subtly, prompt diagnosis and appropriate treatment are critical for a child’s best developmental outcome – and that’s why we’re dedicated to raising awareness of this disease. But awareness is just the first step – we also need more research. The first ever preventive epilepsy research project specific to infantile spasms in tuberous sclerosis complex (TSC) is beginning in the USA. Some researchers believe that by identifying abnormal brain activity prior to the onset of seizures, earlier intervention could prevent infantile spasms or other types of seizures. The study will…
TS Canada ST and BC Children’s Hospital were pleased to present the 2016 Vancouver TSC Educational Conference this past month where sessions were provided by both local and international experts on TSC. A special thanks goes to Dr. Mary Connolly who was instrumental in making this conference happen as were all of our sponsors: Title sponsor: Novartis Silver sponsors: Eisai Limited and UCB Canada Inc. Bronze sponsors: BC Epilepsy Society and Tuberous Sclerosis Alliance Many of our sessions were recorded on video. Browse through the conference videos here We look forward to providing more of these important education meeting in the future!
**NEW VENUE, NEW LOWER REGISTRATION FEES** Join Us for the 2016 Vancouver TSC Educational Conference on September 16-17, 2016 in Vancouver, BC! This one and a half day conference features leading researchers and clinicians specializing in TSC (both local and abroad) and will provide information on the latest research updates, diagnosis and treatment of TSC in both pediatrics and adults. To register and for additional conference details, please click here Vancouver Educational Meeting Flyer
We have photos to show you from our Toronto Zoo Walk! Please click here to view.
On May 15, organizations around the world celebrate Tuberous Sclerosis Complex (TSC) Global Awareness Day.v
A major pharmaceutical manufacturer has commissioned market research to understand the unique experiences of TSC patients and their caregivers. Your participation in this project will help to expand on new treatments, as well as enhance awareness and improve education about TSC. Please click here for additional information.
In celebration of TSC Global Awareness day, Tuberous Sclerosis Canada Sclérose Tubéreuse (TS Canada ST) and the Tuberous Sclerosis Alliance (TS Alliance) are proud to announce they have joined in a partnership that will enhance community support, clinical care and research efforts in North America. For complete details see our official joint statement. JOINT STATEMENT TS Canada and TS Alliance
September 17th, 2016 * Vancouver, BC. TS Canada ST in partnership with the TSC Clinic at BC Children’s Hospital is pleased to announce the 2016 family education conference for those with Tuberous Sclerosis Complex (TSC), their families and their caregivers. This one –day conference will feature leading researchers and clinicians specializing in TSC (both local and from abroad) with topics relating to the latest research, diagnosis and treatment of TSC in both pediatrics and adults. This conference will help you CONNECT with others, CONQUER the many challenges of TSC and CELEBRATE the hope of new treatments. Plan now to join…
TS Canada ST is pleased to announce that we are holding a “WILD FOR A CURE” zoo walk fundraiser and family event in Calgary. Where: Calgary Zoo When: May 15, 2015 @ 9:30am Details: 1km or 5km Run/Walk. Following the run/walk, participants will enjoy a BBQ lunch at the Zoo and time to explore the Zoo for the remainder of the afternoon. Register now for this event! Go to www.runningroom.com to register See attached poster for more information. Calgary zoo walk poster
E-Mail: TSCanadaST@gmail.com | Tuberous Sclerosis Canada, PO Box 35057 Essa Road RO, Barrie, ON L4N 5Z2
