Author Archive

TSC Education and Gathering Event – Calgary

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Alberta Children’s Hospital is holding a Tuberous Sclerosis education and gathering event. When: Friday, January 11, 2019 Where: 4th floor auditorium, Alberta Children’s Hospital Time: 10:15 am to 5:00 pm Please see the event poster for additional information.  We hope to see you there! You must register by November 30th, 2018 by calling Barbara Fox at 403-955-7469 Event poster

Save the date for the 2019 International TSC Research Conference – June 20-22, 2019!

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Check out the 2019 International Tuberous Sclerosis Complex Research Conference Poster for information on the keynote speaker, confirmed speakers and organization committee. Save the date 2019 Research Conference Poster  

2019 International TSC Research Conference – Toronto

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TS Canada ST in partnership with the TS Alliance and the TS Alliance of Mexico is proud to be hosting the 2019 International TSC Research Conference in Toronto. June 20-22, 2019 Chelsea Hotel Toronto Co-Chairs: Elizabeth P. Henske, MD and Michael Wong, MD, PhD More information will become available in the coming months.  Make sure to sign up for updates on the TS Canada ST website.

CORD presents NATIONAL PHARMACARE WEBINAR DEBATES

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The biggest changes in over 30 years to drug regulations and drug plans in Canada will be implemented over the next year. Will your access to prescription drugs get better … or worse? Will the Ontario Conservative government’s rollback on OHIP+ (excluding kids with private drug coverage) affect a proposed National Pharmacare program? It’s up to you! Get informed to get involved. The Canadian Organization for Rare Disorders invites you to learn more about the options for National Pharmacare. Click here for more info as well as an opportunity to share your opinion! Information on how to register for the webinars and other…

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Early Bird Deadline to Register for the 2018 World TSC Conference Ends June 1, 2018

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Co-hosted by the Tuberous Sclerosis Alliance and Tuberous Sclerosis Complex International (TSCi) and dedicated to the memory of Keith Hall, the 2018 World TSC Conference will bring together families and individuals with TSC, caregivers, healthcare professionals, researchers, a wide array of exhibitors, and others from across the globe. The conference will be held at the Hilton Anatole Hotel in Dallas, Texas July 26-29, 2018! Register by Midnight on June 1, 2018 to get the lowest rate for the conference. Full conference registration is only $249 per person and covers educational sessions; breakfast, lunch and dinner; break snacks; and exhibit hall access. After June 1 the rate goes up to $350 per person for a…

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Calgary TSC Family Conference – Registration Now Open!

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Please join TS Canada ST for a TSC Family Conference on May 5, 2018 from 10:00 am to 4:00 pm at the Hotel Alma at the University of Calgary in Calgary, AB. This educational conference will provide families with opportunities to learn more about TSC including updates on treatment and research.  Information on speakers and an agenda can be found here. There will also be a pre-conference workshop on behavioral manifestations and guidelines, also known as TSC-Associated Neuropsychiatric Disorders (TAND) starting at 9:00 am. If you have any questions, please contact Cathy Evanocho at clevanochko@cbe.ab.ca. THIS EVENT IS NOT AFFILIATED WITH NOR ENDORSED BY THE…

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Montreal Joint Conference

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CHU Sainte-Justine Hospital is proud to present a Neurofibromatosis and Tuberous Sclerosis Complex Joint Conference. The conference is being held May 11, 2018 at CHU Sainte-Justine Hospital with the professional portion (English) for Tuberous Sclerosis Complex being held from 8:30am to 12pm and the family portion (French) for Tuberous Sclerosis Complex being held from 1pm to 5:15pm. Program and additional details can be found here. Register here.  

Calgary TSC Conference – May 5, 2018

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Save the date! Join TS Canada ST on May 5, from 10:00 to 2:00 (approx) for a TSC conference at Alberta Children’s Hospital, Calgary, AB. Speakers include Dr Fraser, Pulmonary specialist, Dr Bissler, nephrologist and researcher,  Dr. Bello, paediatric nephrologist, and Dr Appendino, paediatric epileptologist. Registration will open March 26. THANK YOU to Novartis for being the presenting sponsor.

Toronto TSC Conference 2018 – Registration Now Open!

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Please join TS Canada ST  for a TSC Educational Meeting on March 4th from 11:30 AM to 5:00 PM at the Toronto Marriott Downtown Eaton Centre Hotel. If you’d like to attend this event you can RSVP online. The deadline to RSVP for this meeting is February 25, 2018. This educational conference will provide families with opportunities to learn more about TSC including updates on treatment and research.  Information on speakers and agenda can be found here: Toronto conference details and agenda We could not do this without our sponsors.  THANK YOU to Novartis for being the presenting sponsor. Thank you to SickKids…

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Toronto TSC Conference 2018

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Save the date!   Please join us on March 4th at 12:00 PM to 5:00 PM at Toronto Marriott Downtown Eaton Centre Hotel, 525 Bay Street, Toronto. This educational conference will provide families with opportunities to learn more about TSC including updates on treatment and research.  Additional information on speakers and registration will be available shortly. Toronto TSC Conference information

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