Author Archive

2nd Canadian symposium on Tuberous Sclerosis Complex

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The Centre Hospitalier Universitaire (CHU) and Centre Hospitalier de l’Université de Montréal (CHUM) are pleased to announce the return of their in-person symposium focused on Neurofibromatosis Type 1 and Tuberous Sclerosis Complex. The full announcement is provided below. Save the Date! We are excited to announce the 2nd Canadian symposium on Neurofibromatosis type 1 and Tuberous Sclerosis Complex, taking place on October 16th, 2025, at the CHU Sainte-Justine in Montréal, Québec. Join us for an engaging and insightful event that is meant for patients and caregivers. This will be a chance for people affected by NF or TSC from across the country to meet and exchange their…

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Introduction to TAND – Video

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If you missed the last Canadian TSC Educational Series session – Introduction to TAND, you can watch the videos using the links below: Introduction to TAND (PART 1) https://youtu.be/X31XKwaxwvc Introduction to TAND (PART 2) https://youtu.be/q6bpf0w7c_Q

Introduction to TAND – Canadian TSC Educational Series

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Join us on November 14th, 2024 from 6:00pm – 7:00pm EST. for the 4th session of the Canadian TSC Educational Series for caregivers and patients with TSC. This session is an Introduction to TAND by Dr. Elisabetta Trinari (McMaster) The symposium will be held on Google Meet. Don’t forget to register using the link below: Click here for link to: Registration for the Canadian TSC Educational Series We hope to see you there!

Canadian TSC Educational Series – Session 3 Video

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For those who were unable to join us for the 3rd session of the Canadian TSC Educational Series for caregivers and patients with TSC, the video can be viewed in the links below. Management of epilepsy associated with TSC (PART 1) Management of epilepsy associated with TSC (PART 2) The next session ‘Introduction to TAND by Dr. Elisabetta Trinari’ is scheduled for November 14, 2024, from 6:00pm-7:00pm.  For more information and to register, please use the link below: Registration for the Canadian TSC Educational Series

Canadian TSC Educational Series – 3rd Session

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Join us on September 12, 2024 from 6:00pm – 7:00pm EST. for the 3rd session of the Canadian TSC Educational Series for caregivers and patients with TSC.   This 3rd session will focus on the management of epilepsy associated with TSC. The symposium will be held on Google Meet. Don’t forget to register using the link below: Click here for link to: Registration for the Canadian TSC Educational Series We hope to see you there!

Caregiver sleep study

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The University of Birmingham are conducting a study ‘Understanding Caregiver Experiences of Sleep Management Difficulties in Individuals with Tuberous Sclerosis Complex’. If you are a caregiver of a person with TSC who is currently experiencing sleep difficulties, participation in this study might be right for you. Please see the flyer for details.

Canadian TSC Educational Series – 2nd Session

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Join us on Thursday June 13, 2024, at 6:00 pm EST for the 2nd session of the Canadian TSC Educational Series for caregivers and patients with TSC. This second session will focus on ‘What is routine follow-up in TSC: Across the ages’. The symposium will be held on Google Meet. Don’t forget to register using the link below: Click here for link to: Registration for the Canadian TSC Educational Series We hope to see you there!

TSC Awareness Month – fundraiser

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Hi Everyone! May is TSC Awareness month. Cathy Evanochko is a member of our VIP group and Chair Person for the TSC Canada non-profit, charitable organization dedicated to raising public awareness and support for individuals with TSC and their families. Her daughter has TSC. Cathy created a fundraising website with Sipology to help raise funds to help with research and develop awareness about this disorder.  Use this shopping link to help support TSC Canada! https://fundraise-ca.sipology.com/collections/may-tsc-awareness 40% of all proceeds are returned to TSC Canada.  All items are priced $15 each and there is a flat shipping rate of $3 per…

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Canadian TSC Educational Series – Session 1 Video

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For those who were unable to join us for the first session of the Canadian TSC Educational Series for caregivers and patients with TSC, we have posted the video here: Diagnosing TSC and Understanding its cause. The next session is scheduled for June 13, 2024, 6:00pm-7:00pm.  For more information and to register, please use the link below: Registration for the Canadian TSC Educational Series

Canadian TSC Educational Series

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Join us at 7:00 pm EST on Thursday March 21, 2024 for the first session of the Canadian TSC Educational Series for caregivers and patients with TSC. The first session will focus on Diagnosing TSC and Understanding its cause.  Please use the link below to register. Registration for the Canadian TSC Educational Series

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