TSC In the News

Caregiver sleep study


Posted

The University of Birmingham are conducting a study ‘Understanding Caregiver Experiences of Sleep Management Difficulties in Individuals with Tuberous Sclerosis Complex’.

If you are a caregiver of a person with TSC who is currently experiencing sleep difficulties, participation in this study might be right for you.

Please see the flyer for details.

Canadian TSC Educational Series – 2nd Session


Posted

Join us on Thursday June 13, 2024, at 6:00 pm EST for the 2nd session of the Canadian TSC Educational Series for caregivers and patients with TSC. This second session will focus on ‘What is routine follow-up in TSC: Across the ages’.

The symposium will be held on Google Meet.

Don’t forget to register using the link below:

Click here for link to: Registration for the Canadian TSC Educational Series

We hope to see you there!

TSC Awareness Month – fundraiser


Posted

Hi Everyone! May is TSC Awareness month.

Cathy Evanochko is a member of our VIP group and Chair Person for the TSC Canada non-profit, charitable organization dedicated to raising public awareness and support for individuals with TSC and their families. Her daughter has TSC.

Cathy created a fundraising website with Sipology to help raise funds to help with research and develop awareness about this disorder.  Use this shopping link to help support TSC Canada!

https://fundraise-ca.sipology.com/collections/may-tsc-awareness

40% of all proceeds are returned to TSC Canada.  All items are priced $15 each and there is a flat shipping rate of $3 per order.

Let’s all pitch in and make a difference in the lives of individuals and their families impacted by TSC.
#tsccanada #TuberousSclerosisComplex #fundraising

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